Supporting prostate cancer research

Coping with uncertainty in prostate cancer: Exploration of men’s worry and uncertainty related to long-term treatment effects.

A/Prof Ilona Juraskova, The University of Sydney

Common long-term effects of treatment for prostate cancer such as sexual problems, urinary leakage, and bowel problems, can cause major issues in the lives of affected men. Although we know how likely these side effects are to occur, not much is known about the worry and uncertainty men might feel in anticipation of these effects.

This research study aimed to understand whether, and how often, men experience worry and uncertainty about long-term cancer treatment effects, and how men cope with these worries and uncertainties.

The study involved:

  1. Completing a survey (paper copy or online), which asks questions about your cancer treatment and psychological wellbeing.
  2. Taking part in a phone interview where we ask about: i) your experiences with treatment side effects, ii) any worry and uncertainty related to these treatment effects (both experienced and anticipated), and iii) how you coped with these side effects and feelings.

The study had ethics approval, from the Human Research Ethics Committee of Concord Repatriation General Hospital – Sydney Local Health District.

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