Supporting prostate cancer research

Coping with uncertainty in prostate cancer: Exploration of men’s worry and uncertainty related to long-term treatment effects.

A/Prof Ilona Juraskova, The University of Sydney

Common long-term effects of treatment for prostate cancer such as sexual problems, urinary leakage, and bowel problems, can cause major issues in the lives of affected men. Although we know how likely these side effects are to occur, not much is known about the worry and uncertainty men might feel in anticipation of these effects.

Our research study aims to understand whether, and how often, men experience worry and uncertainty about long-term cancer treatment effects, and how men cope with these worries and uncertainties.

The study involves:

  1. completing a survey (paper copy or online), which asks questions about your cancer treatment and psychological wellbeing. The survey is expected to take approx. 20-25 minutes to complete.
  2. taking part in a phone interview where we ask about: i) your experiences with treatment side effects, ii) any worry and uncertainty related to these treatment effects (both experienced and anticipated), and iii) how you coped with these side effects and feelings. The interview will be audio-recorded, and is expected to take 30-60 minutes.

The study has ethics approval, from the Human Research Ethics Committee of Concord Repatriation General Hospital – Sydney Local Health District.

You may be able to join the study if you meet all the following criteria:

  • Have been diagnosed with localised prostate cancer.
  • Have undergone prostatectomy, external radiotherapy, brachytherapy (or combination of these treatments). Individuals currently undergoing long term hormone treatment are also eligible.
  • Have completed treatment in the past 12 months.
  • Understand and can speak fluent English.
  • Are able to give verbal and written consent to participate in the study.

You will not be eligible if you have been diagnosed and treated for advanced prostate cancer.

For more information, please contact:

Nick Handelsman


This study is currently recruiting participants.

Join us today!

Pathfinder is a unique prostate cancer research register that enables prostate cancer survivors to participate in research for a brighter future with their loved ones.

It will enable researchers to save valuable time and money recruiting participants for their projects, so that they can spend more time delivering health benefits to those in need. Click the button to the right to register!